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Jocelyn Meggenhofen: Living With Alexander's Disease
By: Sasha Boudtchenko Jocelyn Renee Meggenhofen was born with a disease that is as rare to get as getting struck by lighting — a form of...
IUDM
Aug 13, 20241 min read
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Beckett Culp: Giving Back to His Community
By: Hannah Peri Beckett Culp's story began when he was just six months old. At a routine checkup, he was diagnosed with a rare and...
IUDM
Aug 11, 20241 min read
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Evelyn Donaldson: Spreading Positivity
By: Darya Neil Evelyn Donaldson was born 7 weeks early and spent her first 5 weeks in the Riley NICU at IU North. Despite early...
IUDM
Aug 9, 20241 min read
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Zaiden Burbrink: Against the Odds
By: Lillian Henninger Zaiden Burbrink entered a world where the odds were stacked against him. He was born with NAS (Neonatal Abstinence...
IUDM
Jul 17, 20241 min read
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Dallas Kolley: A Heart of Gold
By: Mallory Roadruck In July of 2022, Dallas Kolley was born in Riley Hospital for Children’s Maternity Tower with a congenital heart...
IUDM
Jul 10, 20241 min read
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Lucy Beyers: Inspiration for All
By: Kate Acra Lucy Beyers was born with a rare cardiac birth defect called heterotaxy that impacted the arrangement of her internal...
IUDM
Jun 20, 20241 min read
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Kidney Awareness Month Featuring Grace LaSell
By: Ayaan Abbasi Grace LaSell went on a family vacation to Universal Studios in June of 2019. On that trip, she constantly was drinking...
IUDM
Mar 11, 20242 min read
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Heart Health Month Featuring Brylee Ramey
By: Ayaan Abbasi April 30th, 2009, Brylee was born at Bloomington Hospital with nine congenital heart defects and with her heart on the...
IUDM
Feb 26, 20242 min read
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