Pediatric Cancer Awareness Month Spotlight: Erika England

By: Hannah Bukowski

Every September, we shine a light on the courageous journey of children and families affected by pediatric cancer. This month, we're honored to share the inspirational journey of Erika England. She is a Riley kid whose story of resilience, grit, and advocacy continues to inspire others.

Erika was diagnosed with retinoblastoma at the age of six months, an uncommon and aggressive eye cancer that occurs most often in infants and young children. This diagnosis began a long and emotional process not only for Erika, but for her whole family.

With the care of Dr. Vic, Sherry Lee, Dr. Plager, and Dr. Neely at Riley Hospital for Children, Erika was treated with six rounds of chemotherapy. The therapy up front shrunk the original tumor by as much as 80 percent. 

But many smaller tumors grew in the shadow of the original one, leaving her parents with no choice but to make the painful but necessary choice: radiation, or removal of Erika's left eye. They opted for removal, ultimately providing Erika with her best chance at life.

Although Erika does not recall much of her treatment since she was so young, what she does remember is the consideration and courtesy she was shown from the time of her follow-up appointments at Riley.

"Everybody there was just so nice and supportive. It's crazy because towards the end, I was only going back once a year, but they always remembered me. The nurses, doctors, and staff commitment is just really amazing."

Erika never told her Riley story for years. All of this changed when she got involved with Indiana University Dance Marathon (IUDM) and is now the director of the logistics committee.

With IUDM, Erika found more than a purpose, she found some of her best friends. Those people she found in IUDM encouraged her to share her story, not just as a survivor, but as an inspiration for other families walking in similar shoes.

"There could be a little girl somewhere with retinoblastoma today. And because of the research that IUDM makes possible, she might not lose an eye. That's my full-circle moment."

Today, Erika is 19 years cancer-free and continues to be an advocate for children’s health and cancer research. Her journey is a testament to the power of medical care, community, and courage.

“I’m truly thankful for this organization and everything it’s given me like lifelong friendships. IUDM helped me find my voice and reminded me how important it is to share my story.”